The doctors will propose a medical check-up regularly. To keep your heart failure stable, it is important that you take good care of yourself and have yourself monitored by healthcare providers:
It is important to be aware of the symptoms of heart failure so you can respond adequately and consult your doctor, heart failure nurse or other healthcare providers in a timely manner.
The main physical symptoms of heart failure are caused by fluid retention and/or reduced blood flow to the body. Fluid accumulation in the lungs causes more shortness of breath. Fluid accumulation and congestion in the veins cause swelling of the lower legs or abdomen.
If you experience one or more of these symptoms, do not hesitate to contact your doctor or heart failure nurse :
Follow your complaints with this symptom card.
Recognizing your symptoms of heart failure is crucial in understanding how to manage or monitor your condition yourself and when to seek additional check-ups or assistance.
These parameters are ideally written down in the diary provided by your treating cardiologist, but can also be noted in a personal booklet or sheet if no specific diary is available.
It is best to weigh yourself systematically at the same time, namely:
In heart failure, the body may retain salt and fluid. In this case, diuretic medication will be prescribed. Normally a target weight is suggested by your cardiologist. This is your ‘ideal’ weight where the body is not retaining fluid and also not dehydrated. The goal is for your weight to fluctuate stably around this target weight. However, this target weight may change over time and should be regularly monitored and adjusted if necessary. The target weight can increase or decrease due to weight changes due to a changed diet (eating more or less) or other diseases, without there being too much or too little fluid in the body.
In addition, the aim should be to achieve a healthy weight , without obesity (body mass index, BMI > 30 kg/m²), but also avoiding underweight (BMI < 20 kg/m²).
How often do you have to weigh yourself ?
It is best to discuss this with your doctor.
How to interpret changes in weight?
The weight will always fluctuate slightly day by day. Normal weight fluctuations are less than 1 to 2 kilograms, depending on your nutritional and fluid intake or toilet visits that day.
A change in weight of 2 kilograms or more is considered important, especially if there is a further increase in weight 2 or more days in a row. It is best to take contact with your doctor or heart failure nurse.
How to assess weight changes?
Consider purchasing a blood pressure monitor for home use. This allows you to regularly measure your blood pressure and heart rate at home and notice changes more quickly.
The target is a blood pressure lower than 130/85 mmHg.
Higher blood pressure is detrimental to your heart because your heart has to work against higher pressure.
In patients with heart failure with reduced pump function, the aim is to achieve the lowest blood pressure that does not cause discomfort and an upper pressure of more than 90 mmHg. Low blood pressure is therefore not a problem if there are no complaints of dizziness when walking around or fatigue. If you do feel these discomforts and your blood pressure at home is lower than 100-110 mmHg, it is best to contact someone from the care team. Decreasing your medication or other measures may be necessary. Adjustments of the medication should always be made in communication with your doctor.
The target is a regular heart rate around 60 - 65 beats per minute.
Contact the doctor if there is a sudden change in heart rate. For example: if your heart rate is normally always around 60 beats per minute and suddenly turns out to be 110 beats per minute, it is advisable to have a quick evaluation by a doctor with an electrocardiogram (ECG): a cardiac arrhythmia may be present.
A slower heart rate that does not cause symptoms is usually not a problem. If the heart rate drops below 40-45 beats per minute, this should certainly be discussed with your doctor and/or the heart failure nurse. If you experience symptoms of feeling unwell or loss of consciousness, this must be done urgently, possibly via the emergency department. Decreasing your medication or other measures (pacemaker implantation) may be necessary. Adjustments to the medication should always be made in communication with your doctor.